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Deciding with Children in Pediatrics

Children's Participation in Healthcare Decision-Making

  • 1st Edition - October 16, 2024
  • Latest edition
  • Editors: John Massie, Georgina Hall, Lynn Gillam
  • Language: English

**2026 PROSE Award Finalist in Clinical Medicine**Deciding with Children in Pediatrics: Children’s Participation in Healthcare Decision-making provides the ethical underpinning an… Read more

Description

**2026 PROSE Award Finalist in Clinical Medicine**

Deciding with Children in Pediatrics: Children’s Participation in Healthcare Decision-making provides the ethical underpinning and offers practical strategies to foster meaningful participation of children in decisions affecting their healthcare. It will assist clinicians to bring forward the perspectives and values of the child, ensuring their preferences are incorporated into decision-making or appropriately justified when this is not possible. This is to both improve healthcare delivery and serve the best interests of children— now and as decision-makers in the future.

This book reviews theories underpinning the concept of deciding with children and explores how pediatric decision-making is standardly managed. It then proposes a model for making healthcare decisions with children. A panel of experienced clinicians and ethicists demonstrate, via a series of case studies, how to promote children’s participation across a variety of clinical areas, child ages, and developmental stages. It concludes with a review of questions, concerns, and challenges. Deciding with Children in Pediatrics: Children’s Participation in Healthcare Decision-making helps bridge the gap between philosophy and practical clinical ethics and creates a frame of reference for children’s healthcare providers.

Key features

  • Presents philosophical, ethical, and human rights support for promoting child participation in their healthcare
  • Provides practical tools to help clinicians decide with children
  • Clarifies the limits of involving children in their healthcare

Readership

Medical clinicians (medical, nursing, and allied health) and bioethicists who work with children, Students and academics studying bioethics

Table of contents

1. Ethical theory and grounding
David Archard and Georgina Hall

2. Neurocognitive development and medical decision-making
Judah Ping Ern Teo, Nikita Tuli Sood, Carmen Pace, and Marc Seal

3. Psychosocial & contextual influences on children’s healthcare participation
Lorraine Swords

4. Deciding with children: What is the evidence?
Imelda Coyne

5. Traditional approaches to child and adolescent decision-making
Lynn Gillam

6. Deciding with children: The model
John Massie and Sharon Feldman

7. Challenges and limits in deciding with children
Dominic Wilkinson

8. Decision-makirng with young children (including those with attention deficit hyperactivity disorder)
Daryl Efron and Rosalind Mcdougall

9. Decision-making with adolescents
Mick Creati and Douglas Diekema

10. Giving voice when no-one is listening. The role for nurses in deciding with children
Jenny O’Neill and Georgina Morley

11. Deciding with children when the stakes are high (oncology)
Molly Williams, Jayne Harrison and Tamara Zutlevics

12. Deciding with children-beyond disability
Giuliana Antolovich and Jennifer Kett

13. Giving voice: Allied health as supporters of children’s decision-making
Charlotte Barr and Clare Delany

14. Deciding with children who know more than you. Cystic fibrosis as a chronic disease
Katherine Frayman and Bryanna Moore

15. Deciding with children--Surgery
Tony Penington and Joe Brierly

16. Deciding with children: Putting theory into practice
John Massie, Georgina Hall and Lynn Gillam

Review quotes

4. Stars! "...a unique, well-written, well-organized educational book about the process of involving children and adolescents in making decisions about the therapeutic management of their illness. [Its] purpose is to explain to clinicians at all levels and ethicists what 'deciding with children' is, how it has evolved in educational, ethical, and clinical literature, and how to assemble the triadic group of children, parents, and clinicians....This is a superb, detailed, much-needed current book about the process of making clinical decisions about approaching children with illnesses such as cancer or cystic fibrosis and involving them, their parents, and other clinicians and therapists, depending on the children’s developmental level and their level of experience with the illness. This is worth studying for all clinicians involved with caring for these children and adolescents."Review by Joseph Hageman, MD (Evanston Hospital), ©Doody's Review Service 2025. Doody's Score: 92, 4 Stars!

Product details

  • Edition: 1
  • Latest edition
  • Published: October 16, 2024
  • Language: English

About the editors

JM

John Massie

Professor John Massie is the Clinical Director of the Children’s Bioethics Centre and senior consultant in the Department of Respiratory and Sleep Medicine, The Royal Children’s Hospital, Melbourne, Australia. He is also a Professorial Fellow, Department of Paediatrics, University of Melbourne. In his clinical role, John looks after children with neuro-disability requiring ventilator support and also works in the RCH cystic fibrosis clinic. At the CBC, John provides clinical leadership, liaison with clinical staff, ethics advice to RCH executive and supports the CBC building capacity in bioethics across the campus. John has a particular interest in decision-making with children. He has published a number of papers and book chapters relating to ethical issues in paediatric respiratory medicine and the medical humanities. John is the host of the CBC podcast show, Essential Ethics.

Affiliations and expertise
Consultant, Department of Respiratory Medicine, The Royal Children's Hospital Melbourne, Victoria, Australia

GH

Georgina Hall

Dr Georgina Hall is a Clinical Ethicist at the CBC. She is trained in Bioethics (MBioeth, Monash, PhD Bioeth University of Melbourne) and communications (BAJourn, RMIT). Georgina has been involved with the Centre since its inception in 2008. She oversees the development and delivery of a wide range of traditional and innovative education and training programs within the Centre aimed at advancing the ethical literacy of all hospital staff. She is convenor of the monthly Bioethics Forum and a member of the Clinical Ethics Response Group. Her research interests include reproductive ethics and IVF access decision-making, the child's voice in pediatrics and the impact and implications of social media, AI and media coverage on healthcare delivery.

Affiliations and expertise
Children’s Bioethics Centre, Royal Children’s Hospital, Melbourne, Victoria, Australia

LG

Lynn Gillam

Professor Lynn Gillam is the Academic Director and Clinical Ethicist at the Children’s Bioethics Centre. She is an experienced clinical ethicist, originally trained in philosophy (MA, 1988, Oxon) and bioethics (PhD, Monash, 2000). Lynn is also Professor in Health Ethics at the University of Melbourne, in the Department of Paediatrics. At the CBC, Lynn leads clinical ethics case consultations, ethics rounds and education sessions for clinical departments at The Royal Children’s Hospital, Melbourne, Australia. She also provides policy advice and leads research into a range of issues in paediatric clinical ethics - including end of life decision-making, management of differences of sex development, information-giving to children, and parental refusal of treatment.

Affiliations and expertise
Academic Director, Children’s Bioethics Centre, Royal Children’s Hospital Melbourne, Victoria, Australia

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