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Real-World Research to Improve Dementia Care

Embedding Pragmatic Trials of Non-Drug Interventions

  • 1st Edition - September 1, 2026
  • Latest edition
  • Editors: Jill Harrison, Vincent Mor
  • Language: English

Real-World Research to Improve Dementia Care: Embedding Pragmatic Trials of Non-Drug Interventions addresses the urgent need for effective care strategies for the over 50 millio… Read more

Description

Real-World Research to Improve Dementia Care: Embedding Pragmatic Trials of Non-Drug Interventions addresses the urgent need for effective care strategies for the over 50 million individuals living with Alzheimer's disease and related dementias. This insightful book introduces embedded, pragmatic trials as a way to bridge the gap between clinical research and everyday practice, emphasizing collaboration among healthcare systems, researchers, and communities. Through a series of chapters, the book explores partnership strategies, ethical considerations, and the selection of meaningful outcome measures, all aimed at enhancing dementia care. The authors present case studies that showcase successful interventions and innovative practices across care settings.

By highlighting both the challenges and solutions in dementia care, this book serves as a vital resource for healthcare professionals and researchers. It advocates for a compassionate approach that values the voices of individuals living with dementia, ultimately aiming to improve their quality of life.

Key features

  • Explores innovative case studies that demonstrate successful interventions in dementia care across diverse settings
  • Guides on community partners to facilitate collaborative research aimed at improving outcomes for individuals with dementia
  • Covers the ethical and regulatory challenges unique to conducting research involving vulnerable populations
  • Identifies effective measures that resonate with the experiences and needs of people living with dementia and their caregivers
  • Presents emerging technologies that promise to transform dementia research and care practices for the future

Readership

Advanced students, trainees, researchers, and clinicians in the following fields: aging, dementia, dementia care, Alzheimer’s disease, public health, health services research, applied research, real-world research, quality improvement in health care, quality improvement in dementia care, and pragmatic clinical trials

Table of contents

1. Introduction to Embedded Pragmatic Trials to Improve Dementia Care

2. Engaging Partners to Improve Dementia Care

3. Building Research and Community Partnerships in Home Care and Hospice to Conduct Pragmatic Trials

4. Research Methods in Embedded Pragmatic Trials

5. Addressing Disparities and Inequities in Research to Improve Dementia Care

6. Selecting Measures that Matter to People Living with Dementia and Care Partners

7. Anticipating and Addressing Ethical and Regulatory Challenges in Embedded Pragmatic Trials Involving People Living with Dementia

8. Implementing Interventions to Improve Dementia Care: Understanding Mechanisms of Action in Embedded Pragmatic Clinical Trials in Home and Community Settings

9. Emerging Technologies: The Future of Dementia Research

10. Introduction to Case Studies

10a. Case Study 1: Music and Memory: A Pragmatic Trial for Nursing Home Residents With Alzheimer's Disease

10b. Case Study 2: Improving How People Living with Dementia are Selected for Care Coordination: Pragmatic Clinical Trial Embedded in an Accountable Care Organization

10c. Case Study 3: Overcoming Challenges to Recruiting Caregivers in Dementia Care Research

10d. Case Study 4: Implementation of Dementia-Friendly and Age-Friendly Health System Programs across Settings of Care

10e. Case Study 5: INTERACT: Large Scale Research Partnerships with Long-Term Care Communities

10f. Case Study 6: Strategies Associated with COVID-19 Vaccine Coverage among Nursing Home Staff

10g. Case Study 7: A Cluster-randomized Trial of Adjuvanted Versus Nonadjuvanted Trivalent Influenza Vaccine in 823 US Nursing Homes

10h. Case Study 8: Detection of Dementia in the Emergency Department

10i. Case Study 9: ALIGN: Case Study in De-prescribing for Dementia

10j. Case Study 10: The PROTECT Trial: Partnering with Nursing Homes to Reduce Infections

11. Resources to Design, Fund, and Conduct a Pragmatic Trial to Improve Dementia Care

12. Conclusion

Product details

  • Edition: 1
  • Latest edition
  • Published: September 1, 2026
  • Language: English

About the editors

JH

Jill Harrison

Jill Harrison, PhD, is an Executive Director at the NIA IMPACT Collaboratory and an Associate Professor of Practice in the Department of Health Services, Policy and Practice at Brown University School of Public Health. Prior to joining the IMPACT Collaboratory, Dr. Harrison served as the Director of Research for an international non-profit advocacy organization, founded by a patient and focused on implementing person-centered care initiatives in healthcare organizations in 27 countries. She served on the advisory panel for patient engagement at the Patient-Centered Outcomes Research Institute (PCORI) and was the principal investigator of a PCORI Engagement Award about how patient-family advisory councils engage in research. Her research interests include: pragmatic trials in real-world settings, engaging residents of long-term care communities as evaluators of care quality, developing culturally congruent person-centered care approaches in healthcare systems, and organizational cultural change. She completed her post-doctorate at Brown University in health services research.

Affiliations and expertise
Department of Health Services, Policy and Practice at Brown University School of Public Health, USA

VM

Vincent Mor

Vincent Mor, PhD, is a Professor of Health Services, Policy & Practice and Florence Pirce Grant Professor in the Brown University School of Public Health and has been principal investigator of 40+ NIH-funded grants focusing on use of health services and outcomes of frail and chronically ill people. He has evaluated the impact of programs and policies including Medicare funding of hospice, changes in Medicare nursing home payment, and the introduction of nursing home quality measures. He co-authored the Congressionally-mandated Minimum Data Set (MDS) and was architect of an integrated Medicare claims and clinical assessment data structure used for policy analysis, pharmacoepidemiology and population outcome measurement. These data resources are the heart of Dr. Mor’s NIA- funded Program Project Grant, “Changing Long Term Care in America,” which examines the impact of Medicaid and Medicare policies on long-term care.